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the_ignored
SFN Addict
2562 Posts |
 Posted - 07/07/2005 : 00:08:32
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 He's a member here, which I introduced. For a long time now, in private AOL chats with him, and through his postings on IIDB, I've known that he's got Cystic Fibrosis, as well as complications.
His Medicaid has refused to pay for any transplant, so now he's kind of in trouble.
He's set up a site http://www.save-allan.org/ [EDIT] I had to remove some certain words here. I'll explain in PM to a mod... His condition is legit, but I can't mention certain steps being taken. That has to be done on his site itself.
He also has a link from that site to his medical story.
For those not in the know, he's the guy who first started "Fundies Say the Darndest Things". Right now, he needs all the support we can give.
He has a forum where ideas can be tossed around.
EDIT: I just found out about this new site of his, though I've known about his condition for a while now. It's gotten worse.
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>From: enuffenuff@fastmail.fm
(excerpt follows):
> I'm looking to teach these two bastards a lesson they'll never forget.
> Personal visit by mates of mine. No violence, just a wee little chat.
>
> **** has also committed more crimes than you can count with his
> incitement of hatred against a religion. That law came in about 2007
> much to ****'s ignorance. That is fact and his writing will become well
> know as well as him becoming a publicly known icon of hatred.
>
> Good luck with that fuckwit. And Reynold, fucking run, and don't stop.
> Disappear would be best as it was you who dared to attack me on my
> illness knowing nothing of the cause. You disgust me and you are top of
> the list boy. Again, no violence. Just regular reminders of who's there
> and visits to see you are behaving. Nothing scary in reality. But I'd
> still disappear if I was you.
What brought that on? this. Original posting here.
Another example of this guy's lunacy here. |
Edited by - the_ignored on 07/10/2005 10:14:06
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H. Humbert
SFN Die Hard
USA
4574 Posts |
 Posted - 07/07/2005 : 01:02:19 [Permalink]
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Ah, shit. The older I get, the more I realize how fucking unfair life is. I'm almost ashamed to ask, but assuming he gets his operation, anyone know what sort of time that will buy him?
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"A man is his own easiest dupe, for what he wishes to be true he generally believes to be true." --Demosthenes
"The first principle is that you must not fool yourself - and you are the easiest person to fool." --Richard P. Feynman
"Face facts with dignity." --found inside a fortune cookie |
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filthy
SFN Die Hard
USA
14408 Posts |
Posted - 07/07/2005 : 04:13:14 [Permalink]
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Fucking bummer......
I've known him for some years at II. I'll do what I can.
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"What luck for rulers that men do not think." -- Adolf Hitler (1889 - 1945)
"If only we could impeach on the basis of criminal stupidity, 90% of the Rethuglicans and half of the Democrats would be thrown out of office." ~~ P.Z. Myres
"The default position of human nature is to punch the other guy in the face and take his stuff." ~~ Dude
Brother Boot Knife of Warm Humanitarianism,
and Crypto-Communist! 
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Wendy
SFN Regular
USA
614 Posts |
Posted - 07/07/2005 : 07:05:37 [Permalink]
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I was going to make a donation, but his site says he can't accept them yet. I'll check again soon.
Also, while at his site I read the doctors are appealing Medicaid's decision not to cover the cost of transplant. Here's hoping the appeal is successful.
All the best, WinAce. Hang in there! |
Millions long for immortality who don't know what to do on a rainy afternoon.
-- Susan Ertz
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Dave W.
Info Junkie
USA
26022 Posts |
Posted - 07/07/2005 : 07:09:49 [Permalink]
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quote:
Originally posted by H. Humbert
I'm almost ashamed to ask, but assuming he gets his operation, anyone know what sort of time that will buy him?
From what I've just read, CF patients are typically candidates for lung transplant when they're predicted to have less than two years to live. According to a 1998 article, "Lung transplantation in cystic fibrosis: consensus conference statement," the post-transplant 2-year survival rate is 62%, and the 5-year survival rate is 48%, which compares well with transplantation for emphysema. |
- Dave W. (Private Msg, EMail)
Evidently, I rock!
Why not question something for a change?
Visit Dave's Psoriasis Info, too. |
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BigPapaSmurf
SFN Die Hard
3192 Posts |
Posted - 07/07/2005 : 10:48:19 [Permalink]
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Might I suggest being creativly evil?
quote:
Because bunnies are such adorable little critters, people are hopping mad about a Web site called savetoby.com, filled with photos and even a video of a cute rabbit named Toby, accompanied by a threat on his life.
"On June 30, 2005, Toby will die," proclaims an anonymous author on the site. "I am going to eat him. God as my witness, I will devour this little guy unless I receive $50,000 into my account."
The site also contains several recipes for cooking Toby. One, for Lapin Braise, lists as the prime ingredient: "1 Toby cut in serving-sized pieces."
I hear they almost made 30,000k$ |
"...things I have neither seen nor experienced nor heard tell of from anybody else; things, what is more, that do not in fact exist and could not ever exist at all. So my readers must not believe a word I say." -Lucian on his book True History
"...They accept such things on faith alone, without any evidence. So if a fraudulent and cunning person who knows how to take advantage of a situation comes among them, he can make himself rich in a short time." -Lucian critical of early Christians c.166 AD From his book, De Morte Peregrini |
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Kil
Evil Skeptic
USA
13477 Posts |
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Siberia
SFN Addict
Brazil
2322 Posts |
Posted - 07/07/2005 : 16:34:21 [Permalink]
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| Bummer... [sigh] |
"Why are you afraid of something you're not even sure exists?"
- The Kovenant, Via Negativa
"People who don't like their beliefs being laughed at shouldn't have such funny beliefs."
-- unknown
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Ricky
SFN Die Hard
USA
4907 Posts |
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WinAce
New Member
USA
23 Posts |
Posted - 07/07/2005 : 22:24:14 [Permalink]
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Save Toby is a hoax site. A damn good one, though, as evidenced by the number of people--skeptics included--it's fooled.  The name of my website, Save Allan, is a subtle allusion and simultaneous tribute to it. (At one point, I consided a tongue-in-cheek list of "Allan recipes" to serve up in Medicaid's office upon my death that I could list there...)
With the particular complication I have, lungs colonized with the dreaded multiply-antibiotic-resistant germ Burkholderia cepacia (which we all know can't exist, because evolution is wrong and all), odds for survival would be less than for CF patients in general. But not that badly so, with the University of North Carolina's way of doing things, which is why Dr. Egan--their transplant director--is quite optimistic on my chances. He has as-yet-unpublished research being finalized that would show patients in my situation have a 50/50 chance of living five years or more after transplant, with the large majority surviving the first year, at least--similar to survival statistics with other very dangerous illnesses, like pulmonary hypertension. But while they're appealing Medicaid's stupid refusal--justified, no less, with the reason, B. Cepacia, they've never quoted for any other patient before (and they've covered those in my situation earlier)--Dr. Egan was cautious about the prospects for their reversing the decision. I will almost certainly have to fundraise privately before all is said and done, if only as a "just in case" thing. (No money raised would be wasted; since a non-profit organization like the Children's Organ Transplant Association would hold it in escrow for me, any of it that wouldn't be used on my own transplant would go towards that of others, or transplant awareness in general, or stuff like that.)
Thanks for the support, of course. |
| Edited by - WinAce on 07/07/2005 22:27:35 |
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Dude
SFN Die Hard
USA
6891 Posts |
Posted - 07/07/2005 : 23:44:19 [Permalink]
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Man.... that, well, sucks.
Hang in there WinAce.
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Ignorance is preferable to error; and he is less remote from the truth who believes nothing, than he who believes what is wrong.
-- Thomas Jefferson
"god :: the last refuge of a man with no answers and no argument." - G. Carlin
Hope, n.
The handmaiden of desperation; the opiate of despair; the illegible signpost on the road to perdition. ~~ da filth |
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dv82matt
SFN Regular
760 Posts |
Posted - 07/07/2005 : 23:48:53 [Permalink]
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Wow. WinAce I just read your story. Man that's so tough. Keep fighting man.
I'm really glad that you and Jessica found each other. In this respect at least, you are a lucky man.
Here's to you getting the operation you need, and to that operation being as successful as hoped. |
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Siberia
SFN Addict
Brazil
2322 Posts |
Posted - 07/08/2005 : 06:02:06 [Permalink]
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| Best of luck, bro! Hang in there, we'll do what we can. |
"Why are you afraid of something you're not even sure exists?"
- The Kovenant, Via Negativa
"People who don't like their beliefs being laughed at shouldn't have such funny beliefs."
-- unknown
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the_ignored
SFN Addict
2562 Posts |
Posted - 07/08/2005 : 11:05:36 [Permalink]
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Well, I got an email from the producer of the "Infidel Guy" show
WinAce will apparently be on the show once his site is jigged up to take donations, and they may put the link to his site on the front page, as I've asked.
Further, one of the guys from Internet Infidels has said in his post:
EverlastingGodStopper
quote:
I think it's wonderful that Allan's new site is up. I registered recently. And as some of you know, I already wrote to Oprah asking her to consider Allan's story for her show.
It's in an area where you have to be registered to see it though. Same thing on Theology Web.
...(bunch more stuff)
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>From: enuffenuff@fastmail.fm
(excerpt follows):
> I'm looking to teach these two bastards a lesson they'll never forget.
> Personal visit by mates of mine. No violence, just a wee little chat.
>
> **** has also committed more crimes than you can count with his
> incitement of hatred against a religion. That law came in about 2007
> much to ****'s ignorance. That is fact and his writing will become well
> know as well as him becoming a publicly known icon of hatred.
>
> Good luck with that fuckwit. And Reynold, fucking run, and don't stop.
> Disappear would be best as it was you who dared to attack me on my
> illness knowing nothing of the cause. You disgust me and you are top of
> the list boy. Again, no violence. Just regular reminders of who's there
> and visits to see you are behaving. Nothing scary in reality. But I'd
> still disappear if I was you.
What brought that on? this. Original posting here.
Another example of this guy's lunacy here. |
| Edited by - the_ignored on 07/08/2005 11:07:56 |
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Dr. Mabuse
Septic Fiend
Sweden
9688 Posts |
Posted - 07/08/2005 : 13:23:02 [Permalink]
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Oh, man...
As if there wasn't enough evil (religion and greedy politicions, and both at once) in this world already.
I do hope you hang in there, Winace, as long as it takes. |
Dr. Mabuse - "When the going gets tough, the tough get Duct-tape..."
Dr. Mabuse whisper.mp3
"Equivocation is not just a job, for a creationist it's a way of life..." Dr. Mabuse
Support American Troops in Iraq:
Send them unarmed civilians for target practice..
Collateralmurder. |
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trishran
Skeptic Friend
USA
196 Posts |
Posted - 07/10/2005 : 21:18:11 [Permalink]
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Another terrible example of how lame it is that we still don't have national health.
I don't know if this is of any help, but there was a case of a young woman with cystic fibrosis getting some major help from a Portland Oregon philanthropist. Her name was Brandy Stroeder. She was turned down for a lung/liver transplant by Oregon Basic Health. Then Mark Hemstreet offered to pay her transplant bill. He even made his private plane available to take her to medical appointments in San Fransisco. Sadly, Ms Stroeder died before the transplant could be arranged.
Perhaps, since Ms Stroeder is beyond help, it might be worth asking Mr Hemstreet if he would be willing to help WinAce. |
trish |
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